Young and Strong Program
  • About
    • Meet the Team
    • Clinical Sites and Services
    • Research Studies
    • Supporting the Program
    • Contact Us
  • Newly Diagnosed
    • Understanding your Diagnosis
    • Genetics and Family History
    • Treatment Types >
      • Chemotherapy
      • Surgery
      • Radiation
      • Hormone Therapy
    • Building Your Network of Support
    • Coping with Your Diagnosis
    • Coping As A Family
  • Life with Cancer
    • Treatment and Symptom Management >
      • Menopause and Menopausal Symptoms
      • Fertility
      • Sexual Health
      • Lymphedema
      • Tips for Managing Symptoms
    • Supporting and Engaging Your Body >
      • Nutrition
      • Physical Activity
      • Style and Comfort
      • Health and Wellness Tips
    • Logistics: Managing the Details of Your Life >
      • Work and School
      • Financial Supports
      • Getting Organized
    • Finding Community >
      • Early Stage
      • Inflammatory Breast Cancer
      • Metastatic Breast Cancer
  • Survivorship
    • Survivorship Clinic
    • Life Post-Treatment
    • Continued Support
    • Pregnancy After Breast Cancer
    • Volunteer Opportunities
  • Caregivers
    • Resources for All Caregivers >
      • Getting Organized and Managing Logistics
      • Expanding Your Circle of Support
      • Coping: Cancer Impacts Everyone
    • Resources for Family Members >
      • Family Connections
      • Genetic Testing
    • Resources for Partners >
      • Future Pregnancies
  • News & Events
    • Upcoming Events
    • Webcasts
    • 2022 Forum Recordings
    • 2021 Forum Recordings
    • Newsletters
    • Insight Blog
    • COVID-19 and Breast Cancer

Getting Organized and Managing Logistics

HOME > CAREGIVERS > RESOURCES FOR ALL CAREGIVERS > GETTING ORGANIZED AND MANAGING LOGISTICS
Becoming a caregiver comes with a range of new responsibilities and obligations, such as attending medical appointments and taking on more tasks around the house. Most likely, you will need some tools to help you get organized. 
Organization Tips
The following ideas have worked for other people:
Picture
Make a list of key friends, relatives, and neighbors. Include contact information, such as phone numbers and email addresses, for anyone who is willing to help in a pinch. Make sure everyone in the family knows where to find this list: Posting it on the refrigerator is a good choice. Keep extra copies for others, and be sure to have this list with you (on paper, in a tablet, phone, etc.) for easy access.
Picture
Identify a place to keep insurance or disability forms and medical bills. You might set up a specific file folder or envelope for each, so that you can readily find what you need.
Picture
Buy a wall calendar or large date book that is big enough to track multiple events during each day and week. Record your loved one's doctor's and treatment appointments and names of people who are helping out that day. You can try using a different colored pen for each type of event to help organize the process.
Picture
Keep a "medical issues" notebook for listing the names and contact information for members of your loved one's medical team, such as their oncologist, social worker, and primary nurse. Also use this notebook to keep notes on clinic visits, medication schedules and doses, and observations about your partner's physical and emotional reactions. Try to find a notebook or folder with large pockets for storing pamphlets, business cards, and other written materials.

Helpful Apps and Tools

Many caregivers of young adults with breast cancer struggle to keep caring well-wishers informed about their loved one's cancer journey. ​
Picture
CaringBridge understands that a community of loved ones can be a pillar of support when one is going through a health journey such as a cancer diagnosis. CaringBridge offers free, easy, private websites where you can keep your community updated on your loved one's health journey, schedule assistance from people who care, and stay in touch with everyone from a central location.
Picture
Ianacare, is a mobile platform created by a team of caregivers, supporters, patients, and medical professionals with the goal of encouraging, empowering, and equipping family caregivers with the tools and communities so no caregiver goes through their journey alone. With the app, caregivers can build a “team” to coordinate and help post updates, request and receive support, and access resources personalized for your caregiving journey. Caregivers can also be connected to a Caregiver Coach who can help you to navigate your personal situation and provide mentorship around topics such as: 
  • Physical health
  • Mental health
  • Care management
  • Work/life balance
  • Finances/legal documents and resources
  • Basic needs

​Financial and Logistical Resources

Picture
Resource Specialists
Dana-Farber patients have the opportunity to work with a resource specialist to coordinate solutions to financial and logistical challenges that cancer patients and their families face. Resource specialists can help with:
 
  • Local transportation to and from medical appointments that fit your budget
  • Short-term housing accommodations
  • Parking
  • Filling out applications for financial assistance programs for childcare, housekeeping, and groceries
  • Acquiring paperwork necessary for financial assistance applications
  • Food pantry information
  • Fuel assistance programs

To utilize this resource, encourage your loved one to contact  youngandstrong@partners.org or call this department directly at 617-632-3301.
Picture
Ellie Fund
The Ellie Fund provides assistance to breast cancer patients who live in or are receiving treatment in Massachusetts. The services are provided for 3 months for early stage (I-III) breast cancer patients and 6 months for patients living with MBC. All services are tailored to you. The supports that the Ellie Fund can provide include:

  • Grocery Assistance
  • Transportation (i.e. Parking Reimbursement, Gas Gift Cards, Ubers and Lyfts, Cabs)
  • Light Housekeeping
  • Childcare Reimbursement
  • Nutritious, Prepared Meals of Your Choice (selected from a menu)
  • Integrative therapy services

To apply for Ellie Fund assistance, have an oncology professional from your loved one's care team fill out an application. ​
Picture
Community Servings
Community Servings provides home delivered meals and nutrition services and education to individuals and families in Massachusetts with critical and chronic illnesses who are unable to shop or cook for themselves. Community Servings understands that every individual and family have different needs in regard to nutrition and food, especially when illness is involved. The meals provided made-from-scratch and tailored to the unique medical and nutritional needs of clients. Registered dietitian nutritionists offer a range of nutrition care services as well. If you are interested in applying, fill out the application.

Related Topics

Picture
Expanding Your Circle of Support (for caregivers)
Picture
Financial Supports (for patients)
Picture
The Blum Patient and Family Resource Center
 HOME | ABOUT US | NEWLY DIAGNOSED | LIFE WITH CANCER | SURVIVORSHIP | NEWS AND EVENTS | CONTACT
©2020 Young and Strong Progam at Dana-Farber Cancer Institute
  • About
    • Meet the Team
    • Clinical Sites and Services
    • Research Studies
    • Supporting the Program
    • Contact Us
  • Newly Diagnosed
    • Understanding your Diagnosis
    • Genetics and Family History
    • Treatment Types >
      • Chemotherapy
      • Surgery
      • Radiation
      • Hormone Therapy
    • Building Your Network of Support
    • Coping with Your Diagnosis
    • Coping As A Family
  • Life with Cancer
    • Treatment and Symptom Management >
      • Menopause and Menopausal Symptoms
      • Fertility
      • Sexual Health
      • Lymphedema
      • Tips for Managing Symptoms
    • Supporting and Engaging Your Body >
      • Nutrition
      • Physical Activity
      • Style and Comfort
      • Health and Wellness Tips
    • Logistics: Managing the Details of Your Life >
      • Work and School
      • Financial Supports
      • Getting Organized
    • Finding Community >
      • Early Stage
      • Inflammatory Breast Cancer
      • Metastatic Breast Cancer
  • Survivorship
    • Survivorship Clinic
    • Life Post-Treatment
    • Continued Support
    • Pregnancy After Breast Cancer
    • Volunteer Opportunities
  • Caregivers
    • Resources for All Caregivers >
      • Getting Organized and Managing Logistics
      • Expanding Your Circle of Support
      • Coping: Cancer Impacts Everyone
    • Resources for Family Members >
      • Family Connections
      • Genetic Testing
    • Resources for Partners >
      • Future Pregnancies
  • News & Events
    • Upcoming Events
    • Webcasts
    • 2022 Forum Recordings
    • 2021 Forum Recordings
    • Newsletters
    • Insight Blog
    • COVID-19 and Breast Cancer