Genetic Resources and Support
We’ve compiled a list of genetic resources and support services for people affected by breast cancer. These resources can help you further understand your options and connect with expert guidance to receive more personalized support.
Dana-Farber Cancer Institute Genetic Testing and Consultation
Understanding your genetic makeup can be a powerful step in taking control of your health and future. Dana-Farber’s Cancer Genetics and Prevention team—one of the first and largest programs of its kind—offers expert testing, counseling, and guidance to help you understand your risk and make informed choices.
The Mellen and Eisenson Family Center for BRCA and Related Genes
If you’ve learned you have a BRCA mutation or a related genetic change, the Mellen and Eisenson Family Center at Dana-Farber offers care designed with you in mind. Their team of specialists works together across many cancer types to provide personalized treatment, genetic evaluation, and access to leading research and clinical trials.
FORCE: Facing Hereditary Cancer Empowered
FORCE is a national nonprofit that helps people better understand and manage hereditary cancer risk through education, expert guidance, and community support. Their website offers clear, easy-to-follow information about genetic testing and counseling—what it is, why it matters, and how to access it.
Sharsheret
Sharsheret is a national nonprofit offering education, support, and connection for people and families affected by breast and ovarian cancer. With expertise in hereditary cancers, including BRCA mutations—which are more common in the Jewish community—Sharsheret provides culturally sensitive guidance and resources.
MedlinePlus: Genetics
Created by the National Institutes of Health’s National Library of Medicine, MedlinePlus: Genetics offers clear, easy-to-understand information about how genetic variations can affect health. It’s a trusted resource for learning more about the role of genetics in cancer and what those findings might mean for you and your family.
Genetic Support Foundation
Genetic Support Foundation helps people understand and act on their genetic health, especially when hereditary cancer may be a concern. Through secure telehealth appointments, you can meet with experienced genetic counselors who explain testing options, results, and next steps for you and your family.
Gabbi
Gabbi helps you take charge of your breast health by offering personalized risk assessments and action plans created with guidance from breast specialists. With its easy-to-use platform, you can better understand your individual risk and learn proactive steps to protect your health.
National Society of Genetic Counselors (NSGC)
The largest professional organization for genetic counselors in the U.S. and Canada, NSGC offers a trusted online directory to help you find a certified specialist by location or telehealth. Whether you or a family member is facing breast cancer, this tool makes it easier to connect with a counselor who understands hereditary risk, testing options, and next steps.
Quest Diagnostics – Financial Assistance for Hereditary Testing
Quest Diagnostics offers financial assistance to help make hereditary cancer testing more affordable for young adults with breast cancer and their families. Eligible patients may qualify for reduced costs or flexible payment options.
Living Beyond Breast Cancer – Sharing Genetic Information Worksheet
Talking with family about genetic test results can be challenging, but this fillable worksheet from Living Beyond Breast Cancer helps make the conversation easier. It offers simple prompts to plan what to share, how to say it, and who to reach out to, so you can communicate with confidence and care.
Susan G. Komen – Inherited Gene Mutations Resource
Susan G. Komen offers an in-depth, easy-to-understand overview of inherited gene mutations linked to breast and ovarian cancer. The guide explains how genetic changes affect risk, who should consider testing, and how results can inform care.
Susan G. Komen – Family Risk Assessment Tool
Understanding your family’s cancer history is an important step toward managing your health. Susan G. Komen offers a digital form that helps you organize family health information and assess your potential cancer risk. You can even share the completed form with your doctor to guide next steps in your care.
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