Special Considerations for Survivorship

Medical Care After Treatment

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Post-Treatment Care

As you move from active treatment into regular follow-ups, you may notice a big shift. The steady rhythm of frequent appointments becomes less predictable, and it’s a natural reaction to feel unsettled as you adjust. Even so, follow-up care remains essential—and it’s important for you to continue to receive it.

What is follow-up care?

Follow-up care refers to the regular medical checkups you receive after completing active treatment. The primary purpose is to check whether your cancer has returned (recurrence). It also plays an important role in:

  • Understanding long-term or late-developing side effects of treatment 
  • Addressing social, physical, or psychological concerns 
  • Identifying or managing the risk of recurrence 

During follow-up visits, your doctor will review your medical history, perform a physical exam, and talk with you about any symptoms or concerns you may have. Follow-up care may also include physical therapy, occupational therapy, pain management, or support groups, depending on your needs.

Frequently Asked Questions about Follow-Up Care

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Why does follow-up care matter?

Many young adults say that participating in decisions about their ongoing care helps them regain some of the control they felt they lost during treatment.

Research shows that people who feel more in control often feel and function better than those who do not. Staying engaged, asking questions, and working closely with your health care team are meaningful steps toward feeling empowered in life after treatment.

How to Get the Most Out of Your Follow-Up Care

Follow-up visits are an important time to stay connected to your care team. Use this checklist to make sure your questions are answered and your concerns are heard.

Questions About Follow-Up Testing and Surveillance

  • What tests should I be doing on any remaining breast tissue, and how often? 
  •  How will we monitor for recurrence?  
  •  What symptoms should I watch for, and when should I call you? 
  •  How can I receive a treatment summary and survivorship care plan?

Your Medical History and Physical Health

Share any of the following:

  • Any new symptoms that are bothersome or persistent 
  • Physical problems that interfere with daily life (pain, fatigue, sleep issues, changes in sex drive, weight changes, etc.) 
  • Other health conditions (diabetes, arthritis, heart disease, etc.) 
  •  Any medicines, vitamins, herbs, or other treatments you’re using 
  • Any changes in your family medical history

Emotional Health and Support Needs

Let your team know about:

  • Emotional challenges or distress 
  • Any anxiety or depression you’re experiencing now

Additional Topics to Explore

  • Anything you want to learn more about, such as new research, side effects, or future planning. Your care team should be able to help address these concerns or connect you with someone who can. You have a right to get the support you need.

In the below video, Ann Partridge, MD, MPH, founder and director of Young and Strong, discusses common questions and concerns about survivorship after diagnosis of breast cancer.

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